Maurice's
Health
Devoted
readers will be pleased to know that I am doing well on the new combination
of Combivir (AZT + 3TC) and Nevirapine (Viramune) The only problem is
that with no food restrictions, remembering to take them on time is
proving tricky. Also, I need to be aware that it will be some time before
the side effects of Nevirapine will become clear. Already, a statement
has been issued by the EMEA (European Agency for the Evaluation of Medical
Products) regarding the risks of taking the drug. Fortunately, I have
passed the critical first 8 weeks without any problems.
Holiday
When I last wrote I was looking forward to a winter break. Now, sunny
Spain seems like a distant dream. I stayed at an hotel called “Los Patos,”
(The ducks) very appropriate for someone coming from the Potteries.
Sited on the beautiful Benalmádana hillside, Los Patos is comfortable
modern hotel with a good range of indoor and outdoor activities excellent
food and friendly efficient service.
My
intention of taking a rest was happily fulfilled, with the bonus of
glorious sun every day. I managed to take a couple of day excursions
by coach. The first, to Ronda up in the mountains, included a visit
to the bullring - no bulls, but we spotted a pair of royal eagles soaring
in the blue sky above.
The
second was a memorable trip to Gibraltar. Looking to across the pillars
of Hercules to Africa was an incredible experience. Both visits left
me with a desire to return for longer.
However,
If I ever go to Gibraltar again I’ll be sure to take more care of my
nuts! ..Ignoring the guide’s warnings I dished out peanuts from a bag.
Not content with single portions one greedy ape bit me in an attempt
to grab the whole lot.
Surrounded
by lots of British tourists, I didn’t speak as much Spanish as I would
have liked. Nonetheless, I was able to listen to Spanish Radio and read
Málaga newspapers every day. Next time I am determined to go ‘native’.
Body
Positive Staffordshire
I left for Spain shortly after the last meeting which had given me a
big uplift. Although basically well, I had flu symptoms and was feeling
a bit down. The comfort I got from sharing common problems, and experiencing
genuine concern, boosted my morale and made me feel proud to be associated
with the group. For those of you who don’t know, BP Staffs is a self-help
group of people living with HIV/AIDS and provides peer support in a
safe space (just HIV+ people)
Maybe
group meetings don’t appeal to you, but all I can say is that the chance
to share experiences, exchange information and enjoy peer support within
a framework of mutual aid is something well worth a try. It is definitely
a good way of countering the feeling of isolation HIV+ people often
experience especially if you live out in a lonely rural area. Another
way of overcoming the feeling of isolation is by phone or email and
the Internet.
Internet
The
growth and usage of the Internet by the World and his/her partner is
beyond belief. Almost every newspaper, magazine and TV programme and
advert you look at carries a web site address. I even found website
addresses stamped on the letters coming through my letterbox.
Perhaps
the most important thing on the Internet for me is email. Email offers
instant contact with people of similar interests through newsgroups,
bulletin boards and private messages. This is good news for people living
with HIV because it is possible to exchange up to date information about
treatment issues as well as finding almost immediate support and advice
from other positive people worldwide.
If
you are a user of Staffordshire Buddies services, you don’t need to
have your own computer, Because you can have Internet access and your
own private email address at the Hanley Centre.
Media
My mega reading of HIV/AIDS news on paper and screen enable me to tell
you that the 7th annual conference on Retroviruses in San Francisco
occupies major space everywhere. Both paper and electronic publications
carry news of tomorrow’s treatments today. Immune restoration is the
current ’Holy Grail’ and I’m all for it. STI {Structured Interrupted
Therapy – ‘drug holidays’) and resistance testing are two hot topics.
I particularly liked Gus Cairn’s observation in the April edition of
‘Positive Lives’ He reports that the conference was dominated by a feeling
that the first wave of HIV therapy is ebbing, that what we need now
are less toxic treatments that can be tolerated in the long term. I’ll
say ‘amen’ to that!
Phone
calls & email
It
is good to know that people feel they are able to call me. I hope that,
in the true self-help spirit of Body Positive Staffordshire, I will
always be able to respond with a listening ear. I have to point out,
however, that I am not a doctor nor a qualified counsellor so what you
can expect to get is peer support not advice. If you want to call please
phone before 9.30pm and avoid weekends. Please don’t be put off if you
hear the answer phone. It’s normally switched on, but that doesn’t necessarily
mean I’m not at home. So do leave a message then I’ll know it wasn’t
just another telephone sales call for double glazing. Of course you
can email me anytime day or night: mozg@madasafish.com
In
memory
Before I finish I invite you to take a moment to remember or say a prayer
for those who lost their lives or were injured in the Soho bombings
last April. Please also remember Helen who tragically died in a road
accident recently as well as her family and friends who mourn for her.
Helen was a shining example of a dedicated Staffordshire Buddies volunteer
and will be sadly missed by us all.
Lots
more so say, but that’s all for now. Take good care of yourselves,
Maurice
PS
I had a fabulous afternoon at a very useful workshop on resistance testing
in Manchester. I met some wonderful people. But would you believe it?
One of the speakers took me to be an HIV doctor. Of course I soon put
him right!